Level of Satisfaction and Quality of Life of Caregivers of People with Disabilities in Secondary Dental Care


  • Graziane Ribeiro Couto
  • Emílio Prado Fonseca
  • Regiane Cristina do Amaral


Quality of Life, Patient Satisfaction, Caregivers, Disabled Persons


Objective: To assess the level of satisfaction and quality of life (QOL) of caregivers of Patients with Special Needs seen at the Dental Specialties Center in Aracaju, Brazil. Material and Methods: The Program for Primary Care Access and Quality Improvement (PMAQ – DSC) and the World Health Organization's Quality of Life - Brief (WHOQOL-BREF) questionnaires were applied to PSN and caregivers. Results: The PMAQ questionnaire was applied to 31 patients or caregivers; 97% had no paid work and 61% used public transportation to reach the Dental Specialties Center. The WHOQOL-BREF questionnaire was applied to 20 caregivers; 60% considered their life to be good; however, 60% had practically no leisure time. Correlation tests (Pearson’s coefficient) showed a statistically significant correlation between the physical and psychological domain (p=0.02; r=0.64), the psychological and social domain (p=0.033; r=0.48), and the psychological and environment domain (p<0.001; r=0.80). Conclusion: The caregivers and patients with special needs felt satisfied with the specialized oral health service offered by the municipality. Concerning the quality of life of caregivers, the majority stated they had a good quality of life, despite not having the opportunity to participate in leisure-oriented activities and often having negative feelings.


Brazil. Ministry of Health. National Oral Health Policy Guidelines. Brasilia DF; 2004. Available from: http://bvsms.saude.gov.br/bvs/publicacoes/politica_nacional_brasil_sorridente.pdf. [Accessed on March 03, 2019]. [In Portuguese].

Brazil. Ministry of Health. Secretariat of Health Care. Department of Primary Care. Oral Health in the Unified Health System (electronic resource). Brasília: Ministry of Health; 2018. 247p. Available from: http://bvsms.saude.gov.br/bvs/publicacoes/saude_bucal_sistema_unico_saude.pdf. [Accessed on August 08, 2019]. [In Portuguese].

Brazil. Living without Limits - National Plan for the Rights of People with Disabilities. Human Rights Secretariat of the Presidency of the Republic. National Secretariat for the Promotion of the Rights of People with Disabilities 2013. Available from: https://www.desenvolvimentosocial.sp.gov.br/a2sitebox/arquivos/documentos/633.pdf. [Accessed on June 06, 2019]. [In Portuguese].

Brazil. Ministry of Health. Ordinance 1,570 of July 29, 2004. It establishes criteria, standards and requirements for the implantation and qualification of Dental Specialties Centers and Regional Dental Prosthesis Laboratories. Official Gazette of the Federative Republic of Brazil, Brasília, DF, July 30, 2004. Section 1. Available from: http://bvsms.saude.gov.br/bvs/saudelegis/gm/2004/prt1570_29_07_2004.html. [Accessed on December 12, 2019]. [In Portuguese].

Brazil. Ministry of Health. Ordinance 835 of April 25, 2012. It institutes financial incentives for investment and funding for the Specialized Care Component of the Care Network for People with Disabilities within the scope of the Unified Health System. Official Gazette of the Federative Republic of Brazil number 81. Apr 26, 2012. Section 1. Available from: http://bvsms.saude.gov.br/bvs/saudelegis/gm/2012/prt0835_25_04_2012.html. [Accessed on December 12, 2019]. [In Portuguese].

Costa EB, Carneiro JDB, Oliveira AMG. Satisfaction of users assisted at four regional dental specialty centers in Ceará, Brazil. Saude Debate 2018; 42(118):631-45. https://doi.org/10.1590/0103-1104201811807

Kitamura ES, Bastos RR, Palma PV, ICG Milk. Evaluation of the satisfaction of users of the Dental Specialty Centers in the Southeast macro-region of Minas Gerais, 2013. Epidemiol Serv Saúde 2016; 25(1):137-48. https://doi.org/10.5123/S1679-49742016000100014

Pinquart M, Sorensen S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging 2003; 18(2):250-67. https://doi.org/10.1037/0882-7974.18.2.250

Bocchi SCM. Living the burden in becoming a family caregiver for a cerebrovascular accident survivor: knowledge analysis. Rev Latino-Am Enfermagem 2004; 12(1):115-21. https://doi.org/10.1590/S0104-11692004000100016

Stuermer VM, Hartwig AD, Demarco GT, Shardosim LR, Azevedo MS. Impacto na qualidade de vida do cuidador familiar do paciente com necessidade especial. Rev ACBO 2021;10(1):11-19. [In Portuguese].

Instituto Brasileiro de Geografia e Estatistica. 2010 Demographic Census. General characteristics of the population, religion and people with disabilities. Available from: https://biblioteca.ibge.gov.br/visualizacao/periodicos/94/cd_2010_religiao_deficiencia.pdf. [Accessed on April 03, 2019]. [In Portuguese].

Brazil. Presidency of the Republic. Law 13,146, of July 6, 2015. It institutes the Brazilian Law for Inclusion of Persons with Disabilities (Statute for Persons with Disabilities). Official Gazette of the Federative Republic of Brazil, Brasília, DF, Jul 7, 2015. Section 1. Available from: http://www.planalto.gov.br/ccivil_03/_ato2015-2018/2015/lei/l13146.htm. [Accessed on May 05, 2019]. [In Portuguese].

Abreu LG. Impact of malocclusion and orthodontic treatment on the quality of life of adolescents. [PhD thesis]. [Belo Horizonte]: Federal University of Minas Gerais; 2015. Available from: https://repositorio.ufmg.br/bitstream/1843/ODON-A48NUC/1/tese_lucas.pdf. [Accessed on March 10, 2019]. [In Portuguese].

Seidl EMF, Zannon MLC. Quality of life and health: conceptual and methodological aspects. Cad Saude Publica 2004; 20(2):580-8. https://doi.org/10.1590/s0102-311x2004000200027

Fleck MPA, Louzada S, Xavier M, Chachamovich E, Vieira G, Santos L, Pinzon V. Application of the Portuguese version of the abbreviated instrument of quality life WHOQOL-bref. Rev Saúde Pública 2000; 34(2): 178-83. https://doi.org/10.1590/S0034-89102000000200012

A’Campo LEI, Spliethoff-Kamminga NGA. Caregiver education in Parkinson’s disease: formative evaluation of a standardized program in seven European countries. Qual Life Res 2010; 19(1):55-64. https://doi.org/10.1007/s11136-009-9559-y.

Amendola F, Oliveira MAC, Alvarenga MRM. Quality of life of caregivers of dependent patients in the family health program. Texto Contexto Enferm 2008; 17(2):266-72. https://doi.org/10.1590/S0104-07072008000200007

Brazil. Ministry of Health. Instructional manual for the Dental Specialties Centers (DSC). Brasilia DF; 2013. Available from: [Accessed on August 04, 2019]. [In Portuguese].

Brazil. Ministry of Health. External evaluation tool for Dental Specialties Centers. Brasilia DF; 2017. Available from: https://www.saude.rj.gov.br/comum/code/MostrarArquivo.php?C=MTY3Nzg%2C. [Accessed on March 04, 2019]. [In Portuguese].

WHOQOL Group. Study protocol for the World Health Organization project to develop a Quality of Life assessment instrument (WHOQOL). Qual Life Res 1993; 2(2):153-59.

Fleck MPA. Quality of Life Assessment: A Guide for Health Professionals. Porto Alegre: Artmed; 2008. [In Portuguese].

André FS, Henriques RMA, Andrade RAR, Cerqueira RAS. Protocol of the State Dental Specialty Centers. Sergipe State Health Secretariat. Aracaju: State Health Foundation - FUNESA; 2013. Available from: https://funesa.se.gov.br/wp-content/uploads/2018/12/Protocolo-CEOs-2013-FINAL.pdf. [Accessed on March 04, 2019]. [In Portuguese].

Sergipe. State Health Department. Government of Sergipe. State Health Plan. 2016. Available from: https://www.conass.org.br/pdf/planos-estaduais-de-saude/SE_Plano%20Estadual%20de%20Saude%202016%20-%202019%20SERGIPE.pdf [Accessed on March 04, 2019]. [In Portuguese].

Couto GR, Santos MAL, Oliveira LSC, Paiva SM, Fonseca EP, Amaral RC. Analysis of performance of specialized dental care in a care network for people with special needs. Res Soc Dev 2021; 10(2):e-35710212678. https://doi.org/10.33448/rsd-v10i2.12678

Souza GCA. Dental Specialties Center: evaluation of medium complexity care in the public network of Grande Natal. [Dissertation]. Natal: Federal University of Rio Grande do Norte; 2009. Available from: https://repositorio.ufrn.br/jspui/bitstream/123456789/17054/1/GeorgiaCAS.pdf. [Accessed on December 05, 2019]. [In Portuguese].

Rosendo RA, Sousa TMS, Sousa Júnior OE, Dantas MVO, Nogueira PL, Nóbrega DRM, et al. Degree of satisfaction of users of a Dental Specialties Center in Paraíba. Res Soc Dev 2020; 9(8):e167985501. https://doi.org/10.33448/rsd-v9i8.5502

Braccialli LMP, Bagagi PS, Sankako AN, Araújo RCT. Quality of life of caregivers of people with special needs. Rev Bras Ed Esp 2012; 18(1):113-26. https://doi.org/10.1590/S1413-65382012000100008

Carvalho LMS, Paes SR. Social participation through users of the Unified Health System: knowledge and access to the health ombudsman service. Rev Univ Vale do Rio Verde 2016; 14(2):1109-18. https://doi.org/10.5892/ruvrd.v14i2.2686.g2769

Gomes ACMS. Caregivers of people with disabilities: practical perceptions and oral health. [Dissertation]. Natal: Federal University of Rio Grande do Norte; 2016. Available from: https://repositorio.ufrn.br/jspui/handle/123456789/22158. [Accessed on June 06, 2019]. [In Portuguese].

Gonçalves LHT, Alvarez AMA, Sena ELS, Santana LWS, Vicente FR. Profile of the family caregivers of sick/frail elderly in the socio-cultural context of Florianópolis, SC. Texto Contexto Enferm 2006; 15(4):570-77. https://doi.org/10.1590/S0104-07072006000400004

Floriani CA. Family caregiver: overload and protection. State Health Secretariat of Rio de Janeiro. Rev Bras Cancerologia 2004; 50(4):341-5.




How to Cite

Couto, G. R. ., Fonseca, E. P. ., & do Amaral, R. C. . (2022). Level of Satisfaction and Quality of Life of Caregivers of People with Disabilities in Secondary Dental Care. Pesquisa Brasileira Em Odontopediatria E Clínica Integrada, 22, e210088. Retrieved from https://revista.uepb.edu.br/PBOCI/article/view/1314



Original Articles